Meanwhile Luke took Alli to stay at my brothers house so she could play with her cousin Razz while we were gone ;)
I was packing and Luke was loading the car when he went in to check on Easton (the bathroom is like 5 ft from our bedroom and I have a clear view of the tub from our room) he was playing, Luke went to rinse him off and, oops! He had pooped in the tub.
SO we got him out, luke cleaned out the mess while I took the toys to the sink in the kitchen to soak in bleach water then drained the tub and cleaned it. Once that was clean we put Easton BACK in and washed him really quickly.
He had a vague smell of vinegar after that (thats what I cleaned with lol)
Finally we got in the car, went to gas up and run through a car wash, when ALL the car washes near by were either closed or broken.
So, mud covered car and all we headed out of town.
We stopped in Abilene and had lunch at Cracker Barrel where Easton was a celebrity! People just love him, and he LOVES the attention.
He also had his first bites of apple dumplin & ice cream, not a bad day!
Once we got to the hotel we just ate at IHOP, right at the hotel and went to bed.
March 4, 2013
We had a Pre-op appointment with the ENT who would be placing Eastons tubes during the palate closure.
That appointment took all of 10 minutes, took us longer to find the place than it did to see the Dr.
He explained what wold happen and then we had the rest of the day to play. We went to Half priced books, (2 different ones actually lol) and Target and did some shopping.
Mom and Dad came in that afternoon and we all had dinner at applebees.
March 5, 2013
Luke and I didnt sleep much that night, probably 4 hours total between the two of us. We got up at 11:30 to try and get Easton to drink some formula before the cut off, but he refused it. at 3:00 I gave him some pedialyte and he sucked it down and went back to sleep. Luke and I got up and got ready arount 4:30 and at 5:40 we were heading to the hospital.
Easton was such a happy camper that morning.
There was a bad wreck on the Interstate on our way, a man was ejected and traffic was beginning to bvack up. Thankfully we got through and were not late.
At 6:00 AM we were the first to use the Valet parking at Cooks Childrens. We checked in, paid and went up to Surgery.
They took us back, Talked to the nurses and anesthesiologist. Easton sounded a little junky so we did a breathing treatment on him, which cleared it up and we were cleared for surgery. Dr. Hubli came in and explained what he would be doing, it all made sense, and before I knew it I was watching my baby be wheeled away, smiling and happy, on a gurney.
about 40 minutes later the nurse called and told me that he was happy, had gone to sleep well and that surgery had just begun, they expected about an hour and 1/2.
around 9:00 the ENT came out and told us tubes went in, there was a LOT of fluid in his ears and that everything looked good. About 20 min after that Dr Hubli came out, said he was the perfect case, everything went super smooth and he was extremely pleased.
So we waited
about 10:40 the Recovery nurse called and told me it woul dbe about another hour, that it would be a good time to go get some lunch.
So we did.
After we ate Mom and I went in to the Build a Bear workshop to make him a gift, while we were in there, the nurse called for us (15 minutes earlier than expected)
So Luke and I rushed back upstairs and they let us go back in to recovery.
We stayed in there with Easton until 7:00 PM.
Easton was a little swollen, his tongue was hanging out, he had a big black stitch in his tongue. He had a lot of dried blood in one ear, around his mouth and under his nose. He was on oxygen.
FInally they moved us to the PICU.One night in that place and I pray that I never ever have to experience it again, nor do any of you reading. Its a rough place. We were in a corner, open bay, room with sheets on either side seperateing us from two other PICU patients. One, a very teeny new born on a respiratory isolation, and the other a VERY bratty 13 year old boy who was just finding out he was diabetic and they were monitoring his blood sugar every hour.There would be no sleep. Easton would not let us put him down, so we watched every movie available to us, and took turns taking 20 minute cat naps. At one point a nurse came and held him so we could both lay down, we got about an hour of sleep then. Easton was hooked up to pulse monitors, heart monitors, stomach monitors, breathing monitors, IV in his hand, had No-Nos on and for a was receiving oxygen through a cannula.The nurses in the PICU are amazing, they really are, but I do not envy them at all.Easton received Loratab every 4 hours and morphine in between. He was also getting breathing treatments every 4 hours. While in the PICU we consulted with a Pulmonary SPecialist (supposed to be one of the best in the business) who we will see again in a few months. She did not diagnose E with asthma but said he sounds like he could have it, we will give steroid treatments as a preventative from now on.Remember that lunch we had at 10:40 on March 5? Thank goodness for that, because we wouldnt eat again for 24 hours. No food is allowed in the PICU and only bottled drinks. I refused to leave the "room" other than an occasional bathroom break. I did send Luke to get us a drink and he ahd some crackers while he was gone.around 10:00 AM we were transferred to a private room on the regular floor. Ive never been so glad in my LIFE to be in a hospital room. In there we had a shower and walls! :)Easton got to ride up to the 4th floor in a wagon, which he thought was really cool.He did pretty good most of the day. Luke and I got some food and showered and we were doing better at that point too. He still wouldnt let us put him down.Most of the monitors came off at this point too and he was more awake.Easton would not drink anything. His sippy cup freaked him out, and anytime youc ame near him with a syringe he would thrash. Around 8PM the nurse suggested we try jello. SUCCESS!
he LOVED it! But that would be it for about 12 hours.Around 10PM his IV came out, they came and I carried him down the hall where they attempted to put a new one in three times.
This was the single most painful experience of my life.
He was SCREAMING, I was trying to hold him, along with 2 other nurses, he would just look at me with this horrifying look.
They were not successful and we went back to the room. he fell asleep so hard he did let me put hiim down for a while this time. They decided that he didnt need the IV any longer, so we really had to push the fluids. after being off IV fluids about 8 hours he was thirsty and we got about 4 oz of formula in him (The surgeons PA was int he room when we were doing this, so this REALLY helped our case)
THe morning shift change brought in Fay, the new nurse, and boy was she a character. She was a contract nurse from New Orleans, and she was WILD. She had WILD and big hair, she danced and sang and had a lot of opinions and Easton LOVED her.
It was March 7, and we got to go home.
We went back to the hotel and spent the night there, where we slept (only getting up once for about an hour with Easton) almost 10 hours.
Came home on Friday and here we are.
It is Sunday, march 10, 2013 and He is teething, has thrush and just had oral surgery. He is miserable and uncomfortable. He acts scared when he wakes up in his bed and wants to be held.
But he is eating well. The thrush seems to be the biggest problem tonight, you can hear it in his hoarse voice.
This has been a rough week. One that we will never forget, and that I am so glad is behind us.
Im writing this because I wanted to document it before I forget some of the details and I wanted to share with whoever is reading what the experience was like.
